He is a very brave little boy that suffers from a rare and severe form of epilepsy called 'Infantile Spasms'. An infantile spasm is a specific type of seizure seen in an epilepsy syndrome of infancy and childhood known as West Syndrome. . He has over 100 seizures a day.
We recently spoke with Tj’s Dad Tony and he told us that they received great news from the surgeons in the States. Tony told InTallaght, “We are flying out to Detroit on Friday22nd February. He is being admitted to the hospital there on Sunday 24th February for further testing and the work up for surgery. “His first surgery is planned for 7th March. If all goes well he will have a 2nd surgery on 13th March. There has been loads of support for Tj in the community, with loads of fundraisers and sports events taking place. Ourselves at The Square have entered a team to compete in the 5-a-side Tournamentthat took place in the Postal Club on the Kiltipper Road.
Tj’s Pharmacist, Jennifer from Doc Morris braved the freezing cold waters recently and jumped into the 40 foot out in Dun Laoighaire and in doing so helped raise over €500. Well done Jennifer!
There is so many more events going helping to raise funds for Tj’s medical expenses. The whole community have really come together to help this brave little boy. Tony was very appreciative of all the support they have been receiving, “The people of Tallaght have been absolutely brilliant with their support, we can’t thank them enough.”
For anyone who wants to keep up to date with TJ’s progress and to find out about events please keep an eye out on the Facebook page, TJ’s Epilepsy Journey.
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